Optimising motor neurone disease patient care strategies

A recent study into motor neurone disease (MND) shed light on critical factors impacting patient survival following gastrostomy, a vital intervention to minimise weight loss and maintain good nutritional status.

Analysing data from 94 MND patients who underwent gastrostomy at Fiona Stanley Hospital, our FSH researchers uncovered the following significant correlations:

• The median survival time post-gastrostomy was found to be 357 days.
• Reduced survival times were exhibited by:
  • patients with a lower body mass index (< 18.5 kg/m²) at the time of gastrostomy insertion
  • older patients
  • patients with greater weight loss from the time of MND diagnosis to gastrostomy.
• Prolonged survival was linked to limb onset of MND and consistent use of non-invasive ventilation (NIV) when needed and tolerated.

The findings underscored the importance of preventing or minimising weight loss post MND diagnosis and promoting NIV usage in enhancing the survival prospects of MND patients with gastrostomy.

The study's insights offer healthcare professionals valuable guidance in optimising patient care strategies, potentially extending the lives of those battling this challenging neurodegenerative condition.

By addressing modifiable factors, clinicians can empower MND patients with gastrostomy to navigate their journey with greater resilience and hope.

Read the article (external site).

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